82 FR 52311 - Agency Information Collection Activities: Submission to OMB for Review and Approval; Public Comment Request; Be The Match® Patient Services Survey, OMB No. 0906-0004-Revision

DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration

Federal Register Volume 82, Issue 217 (November 13, 2017)

In compliance with the Paperwork Reduction Act of 1995, HRSA has submitted an Information Collection Request (ICR) to the Office of Management and Budget (OMB) for review and approval. Comments submitted during the first public review of this ICR will be provided to OMB. OMB will accept further comments from the public during the review and approval period.

[Federal Register Volume 82, Number 217 (Monday, November 13, 2017)]
[Notices]
[Pages 52311-52312]
From the Federal Register Online  [www.thefederalregister.org]
[FR Doc No: 2017-24494]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Agency Information Collection Activities: Submission to OMB for 
Review and Approval; Public Comment Request; Be The Match[supreg] 
Patient Services Survey, OMB No. 0906-0004--Revision

AGENCY: Health Resources and Services Administration (HRSA), Department 
of Health and Human Services.

ACTION: Notice.

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SUMMARY: In compliance with the Paperwork Reduction Act of 1995, HRSA 
has submitted an Information Collection Request (ICR) to the Office of 
Management and Budget (OMB) for review and approval. Comments submitted 
during the first public review of this ICR will be provided to OMB. OMB 
will accept further comments from the public during the review and 
approval period.

DATES: Comments on this ICR should be received no later than December 
13, 2017.

ADDRESSES: Submit your comments, including the ICR Title, to the desk 
officer for HRSA, either by email to [email protected] or by 
fax to 202-395-5806.

FOR FURTHER INFORMATION CONTACT: To request a copy of the clearance 
requests submitted to OMB for review, email Lisa Wright-Solomon, the 
HRSA Information Collection Clearance Officer at [email protected] or 
call (301) 443-1984.

SUPPLEMENTARY INFORMATION:
    Information Collection Request Title: Be The Match[supreg] Patient 
Services Survey.
    OMB No.: 0906-0004--Revision.
    Abstract: The National Marrow Donor Program[supreg]/Be The 
Match[supreg] is a HRSA contractor dedicated to helping patients and 
families get the support and information they need to learn about their 
disease and treatment options, prepare for a blood stem cell 
transplant, and thrive after a transplant procedure. The information 
and resources provided help individuals navigate the bone marrow or 
cord blood transplant process. Participant feedback is essential to 
understand the needs for transplant support services and educational 
information across a diverse population. This information is used to 
determine the helpfulness of existing services and resources. Feedback 
is also used to identify areas for improvement and develop future 
programs.
    Need and Proposed Use of the Information: Barriers to access to 
bone marrow or cord blood transplant related care and educational 
information are multi-factorial. Feedback from participants is 
essential to understand the changing needs for services and information 
as well as to demonstrate the effectiveness of existing services. The 
primary use for information gathered through the survey is to determine 
helpfulness of participants' initial contact with Be The Match[supreg] 
Patient Services Coordinators (PSC) and to identify areas for 
improvement in the delivery of services. In addition, stakeholders use 
this evaluation data to make program and resource allocation decisions.
    The survey includes the following items to measure: (1) Reason for 
contacting Be The Match[supreg], (2) if the PSC was able to answer 
questions and easy to understand, (3) if the contact helped the 
participant to feel better prepared to discuss transplant with their 
care team, (4) increase in awareness of available resources, (5) 
timeliness of response, and (6) overall satisfaction.
    Proposed changes to the survey instrument include updated 
references to the survey title and staff titles. Changes to the 
questions include minor changes to question one, changes to the 
instructions for questions three and four, and minor rewording of 
question

[[Page 52312]]

six. Question eight is simplified. References to race and ethnicity are 
updated to better match preliminary U.S. Census Bureau question format 
and statements from the U.S. Department of Education to allow 
individuals to self-identify their ethnicity and race and permit 
individuals to select more than one race and/or ethnicity. These 
changes will not increase respondent burden.
    Likely Respondents: Respondents will include all patients, 
caregivers, and family members who have contact with Be The 
Match[supreg] Patient Services Coordinators via phone or email for 
transplant navigation services and support. The decision to survey all 
participants was made based on historic evidence of patients' 
unavailability due to frequent transitions in health status as well as 
transfer between home and the hospital for initial treatment and care 
for complications.
    Burden Statement: Burden in this context means the time expended by 
persons to generate, maintain, retain, disclose, or provide the 
information requested. This includes the time needed to: (1) Review 
instructions; (2) develop, acquire, install, and utilize technology and 
systems for the purpose of collecting, validating, and verifying 
information, processing and maintaining information, and disclosing and 
providing information; (3) train personnel; (4) be able to respond to a 
collection of information; (5) search data sources; (6) to complete and 
review the collection of information; (7) and to transmit or otherwise 
disclose the information. The total annual burden hours estimated for 
this Information Collection Request are summarized in the table below.

                                    Total Estimated Annualized Burden--Hours
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                                                     Number of                    Average burden
            Form name                Number of     responses per       Total       per response    Total burden
                                    respondents     respondent       responses      (in hours)         hours
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Be The Match[supreg] Patient                 420               1             420            0.25             105
 Services Survey................
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    Total.......................             420  ..............             420  ..............             105
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Amy McNulty,
Acting Director, Division of the Executive Secretariat.
[FR Doc. 2017-24494 Filed 11-9-17; 8:45 am]
BILLING CODE 4165-15-P