Sickle Cell Disease Newborn Screening Follow-Up Program
HRSA will provide $65,500 in supplemental award funds to each of the 25 Sickle Cell Disease (SCD) Newborn Screening Follow-Up Program (NBS FP) grantees under HRSA-21-036 in fisc...
Health Resources and Services Administration (HRSA), Department of Health and Human Services.
ACTION:
Notice of Supplemental awards.
SUMMARY:
HRSA will provide $65,500 in supplemental award funds to each of the 25 Sickle Cell Disease (SCD) Newborn Screening Follow-Up Program (NBS FP) grantees under HRSA-21-036 in fiscal year (FY) 2025, totaling $1,637,500. The FY 2025 supplemental funds will support grant activities that are in scope of program goals and objectives. The supplemental funding can support activities related to: increasing access to medical and support services, particularly during the pediatric to adult transition period; improving data systems; increasing workforce training and knowledge; expanding quality improvement projects; or conducting outreach to help identify individuals living with SCD who have been lost to follow-up. These activities will strengthen the linkage of individuals with SCD to appropriate and ongoing care to improve health outcomes.
FOR FURTHER INFORMATION CONTACT:
Hakim Fobia, Public Health Analyst and Project Officer, Genetic Services Branch, Division of Services for Children with Special Health Needs, HRSA, at
scdprograms@hrsa.gov
or 301-945-9842.
SUPPLEMENTARY INFORMATION:
Intended Recipients of the Award:
25 SCD NBS FP recipients listed in Table 1.
Amount of Non-Competitive Awards:
25 awards at $65,500 (total: $1,637,500).
( printed page 43191)
Project Period:
September 1, 2021, to August 31, 2026.
Cayenne Wellness Center and Children's Foundation, Inc
Burbank, CA
65,500
D1JMC42472
Children's Sickle Cell Foundation, Inc
Pittsburgh, PA
65,500
D1JMC42473
James R. Clark Memorial Sickle Cell Foundation
Columbia, SC
65,500
D1JMC42471
Piedmont Health Services and Sickle Cell Agency
Greensboro, NC
65,500
D1JMC42476
Sickle Cell Anemia Foundation of Oregon, Inc
Portland, OR
65,500
D1JMC42470
Sickle Cell Association
Florissant, MO
65,500
D1JMC42477
The Sickle Cell Association of New Jersey, Inc
Newark, NJ
65,500
D1JMC42469
Sickle Cell Disease Association of America Michigan Chapter, Inc
Detroit, MI
65,500
D1JMC42478
Sickle Cell Disease Association of America Philadelphia-Delaware Valley Chapter
Philadelphia, PA
65,500
D1JMC42462
Sickle Cell Foundation of Arizona, Inc
Vail, AZ
65,500
D1JMC42465
Sickle Cell Foundation of Georgia, Inc
Atlanta, GA
65,500
D1JMC42479
Sickle Cell Association of Texas Marc Thomas Foundation
Austin, TX
65,500
D1JMC42480
Sickle Cell/Thalassemia Patients Networks, Inc
Brooklyn, NY
65,500
D1JMC42481
Supporters of Families with Sickle Cell Disease, Inc
Tulsa, OK
65,500
D1JMC42464
University of Miami
Miami, FL
65,500
D1JMC46837
Sickle Cell Disease Foundation
Ontario, CA
65,500
D1JMC46836
Sickle Cell Disease Association of America Mobile Chapter
Mobile, AL
65,500
D1JMC46834
Crescent Foundation, Inc.
Philadelphia, PA
65,500
D1JMC46835
Metropolitan Seattle Sickle Cell Task Force
Seattle, WA
65,500
D1JMC46838
Sickle Cell Foundation of Tennessee
Memphis, TN
65,500
Justification:
In year 4 of 5 of this program, funding is being made available for FY 2025 to 25 current funding recipients under HRSA-21-036 to facilitate access to quality SCD care by conducting outreach and working with individuals living with SCD and families from the time a newborn screen identifies a child with possible SCD through diagnosis, treatment, and follow-up across the lifespan. Such funding helps bridge access to services by supporting community-based organizations in reaching individuals in the communities where they reside and providing a critical link to health care and other social services to improve the lives of individuals living with SCD. SCD NBS FP grantees will use the supplemental funding to improve appropriate health care and social services utilization by targeting direct and indirect barriers to accessing health care such as transition support, social service linkage, data system development, workforce educational support and training, expanding quality improvement projects, and other services. The above activities are within the scope of the NBS FP program as described in HRSA-21-036.