Department of Health and Human Services
National Institutes of Health
Pursuant to section 1009 of the Federal Advisory Committee Act, as amended, notice is hereby given of a meeting of the Muscular Dystrophy Coordinating Committee.
The meeting will be held as a virtual meeting and will be open to the public as indicated below. Individuals who plan to view the virtual meeting and need special assistance or other reasonable accommodation to view the meeting should notify the Contact Person listed below in advance of the meeting. The meeting can be accessed from the NIH Videocast at the following link: https://videocast.nih.gov. Registration is not required to access the videocast.
Name of Committee: Muscular Dystrophy Coordinating Committee.
Date: August 26, 2026.
Time: 1:00 p.m. to 4:00 p.m.
Agenda: The purpose of this meeting is to bring together committee members, representing government agencies, patient advocacy groups and people with lived experience to discuss topics of interest to the muscular dystrophy communities. Furthermore, the upcoming solicitation for public comment on the final draft of the 2026 MDCC Action Plan for the Muscular Dystrophies will be detailed.
Address: National Institutes of Health, Neuroscience Center, 6001 Executive Boulevard, Rockville, MD 20852.
Meeting Format: Virtual Meeting.
Contact Person: Emily F. Carifi, Ph.D., Program Director, NINDS, 6001 Executive Blvd., Bethesda, MD 20892, (301) 496-0665, MDCC@nih.gov.
Any interested person may file written comments with the committee by forwarding the statement to the Contact Person listed on this notice. The statement should include the name, address, telephone number and when applicable, the business or professional affiliation of the interested person.
Dated: July 28, 2026.
Rosalind M. Niamke,
Program Analyst, Office of Federal Advisory Committee Policy.