82 FR 44191 - Notice of Single-Award Deviation From Competition Requirements for the Severe Combined Immunodeficiency (SCID) Newborn Screening Program at the Jeffrey Modell Foundation

DEPARTMENT OF HEALTH AND HUMAN SERVICES
Health Resources and Services Administration

Federal Register Volume 82, Issue 182 (September 21, 2017)

HRSA announces the award of an extension in the amount of $2,000,000 for the Severe Combined Immunodeficiency (SCID) Newborn Screening program at the Jeffrey Modell Foundation (JMF). The extension will allow JMF, the cooperative agreement recipient, during the budget period of May 1, 2017 to April 30, 2018, to provide technical assistance and support to states for the implementation of population based newborn screening for SCID.

[Federal Register Volume 82, Number 182 (Thursday, September 21, 2017)]
[Notices]
[Page 44191]
From the Federal Register Online  [www.thefederalregister.org]
[FR Doc No: 2017-20116]


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DEPARTMENT OF HEALTH AND HUMAN SERVICES

Health Resources and Services Administration


Notice of Single-Award Deviation From Competition Requirements 
for the Severe Combined Immunodeficiency (SCID) Newborn Screening 
Program at the Jeffrey Modell Foundation

AGENCY: Health Resources and Services Administration (HRSA), Department 
of Health and Human Services.

ACTION: Notice of award.

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SUMMARY: HRSA announces the award of an extension in the amount of 
$2,000,000 for the Severe Combined Immunodeficiency (SCID) Newborn 
Screening program at the Jeffrey Modell Foundation (JMF). The extension 
will allow JMF, the cooperative agreement recipient, during the budget 
period of May 1, 2017 to April 30, 2018, to provide technical 
assistance and support to states for the implementation of population 
based newborn screening for SCID.

FOR FURTHER INFORMATION CONTACT: Jill F. Shuger, ScM, Division of 
Services for Children with Special Health Needs, MCHB, HRSA, 5600 
Fishers Lane, Rockville, Maryland 20857, Phone: (301) 443-3247, Email: 
[email protected].

SUPPLEMENTARY INFORMATION: 
    Intended Recipient of the Award: Jeffrey Modell Foundation.
    Amount of Non-Competitive Awards: $2,000,000.
    Budget Period of Supplemental Funding: May 1, 2017 to April 30, 
2018.
    CFDA Number: 93.110.
    Authority: Public Health Service Act, Sec.  1109, as amended by the 
Newborn Screening Saves Lives Reauthorization Act of 2014 (Public Law 
110-204) (42 U.S.C. 300b-8).
    Justification: The Maternal and Child Health Bureau (MCHB) is 
proposing that JMF continue activities under the current cooperative 
agreement to ensure the implementation of newborn screening for SCID in 
all 50 states, particularly in the states that have yet to implement 
SCID screening (i.e., Alabama, Arizona, Indiana, Kansas, Louisiana, 
Nevada and North Carolina). Using its resources and centers, JMF will 
provide technical assistance in areas of funding, state government 
education, and linkage to expert care and patient access to a national 
network of specialized treatment centers. Further, JMF will continue to 
support states with implementation of SCID screening and follow up as 
well as the immediate treatment of infants identified with SCID. JMF 
will use the data collected from the states to educate clinical 
immunologists, neonatologists and other providers on effective 
screening for SCID. Additionally, JMF will continue to support 
education and awareness of newborn screening for SCID to families and 
health care providers and provide education to primary care providers 
and medically underserved populations.

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                                                                                  Fiscal year      Fiscal year
                                                                                      2017       2017  estimated
          Grantee/organization name              Grant No.          State          authorized      supplemental
                                                                                 funding level       funding
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Jeffrey Modell Foundation...................            UG5MC28325         UT       $2,000,000       $2,000,000
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    Dated: September 7, 2017.
George Sigounas,
Administrator.
[FR Doc. 2017-20116 Filed 9-20-17; 8:45 am]
 BILLING CODE 4165-15-P